A Miracle....

...yep a MIRACLE that's what it is.  There's really no other way to explain it...I guess to explain though I have to actually start at the beginning.  Last year when Kolby has his annual (the apt that goes along with his birthday) appointment with Hematology (for his Hemophilia) we discussed why he kept having the same bleed on his forehead.  It had been going on for over a month & he had been infused 3 times in the past 30 days.  We were scared & we had heard some pretty disturbing things.  Kolby's hemophilia up to that point had been mild & was really under control.  Now we had seen several doctors & more than one had thrown around the idea that an inhibitor was developing.  This was not good...it was downright horrible & scary.  The dr. drew some blood & re-ran all his numbers plus some blood work to check for inhibitors.  She also mentioned that the last blood work that had been down was from the previous year when we had done his test for a drug to see how he responded to it & that those numbers had been unexpectedly high, but she was sure it was due to the stress of all day blood draws.  Eric later explained that Kolby had done nothing short of screamed all day long...which would explain higher numbers.  So we had his blood drawn & I put it out of my mind.  The blood was going to 2 different locations & I wouldn't have results for a month.  If I had learned one thing with Kolby & the hemophilia it was to enjoy each day because you never knew if tomorrow something might happen that would change your life.  Well a month later our lives changed in a big way.  I got a call from our nurse and she explained that Kolby's factor numbers indicated that Kolby did not in fact have Hemophilia.  I was stunned, shocked, confused & so many other emotions.  She tried to explain that his initial lab work must have been wrong (all 4 draws done 3 months apart for the first year) and how she was sure that they had a handful of kids who had been misdiagnosed at the same time.  She couldn't explain away all the bleeds that he had been treated for since birth because there was not explanation, at least not one I was buying.  She then said that our dr. wanted to watch Kolby for the next year & for us to keep a journal of all his bleeds for a year & then we would retest & reevaluate what was going on with Kolby, but for sure he didn't have hemophilia.  It was so much to take in & so much uncertainty that we decided to tell our parents, family, & a couple of close friends.  As you may not have realized I haven't posted once this past year about Kolby & hemophilia.  That is because since the time I got that call from our nurse to now Kolby has not exhibited one sign or symptom of any bleeding disorder.  His head healed & since then he hasn't had another thing happen.  Now he has been hurt many, many times as boys his age will do.  His tooth was jarred lose with Logan's foot, almost lost the tooth but as far as bleeding nothing more than a normal kid, maybe less.  He has had his head hit with kick balls & nothing more than a normal knot.  His mouth was completely cut open with a huge hole & it bleed, but still nothing more than one might expect.  His lips been busted,  his nose has bleed...I could go on & on.  The point is things that would have caused us craziness for weeks on end a couple years back were now not needing more than a blink of the eye.  I've gotten to the point that I treat him like any other kid because that's what he has become...any other kid.  But if I'm being truthful Aug was starting and while i should have been pumped up to go & tell the dr what the last year had held for us I was terrified.  I was scared it was all a dream, I was scared she was going to say opps we made a mistake...he has hemophilia because it doesn't go away...NOT EVER!  Eric made me make our appointment after I had put it off for a while.  Well today was the day & although I didn't show concern or fear I was really nervous.  In my heart I know what happened with Kolby, but I didn't want to hear some dr. tell me something else.    We went in & we talked about the past year.  She was very pleased & explained that it's what one would expect with his current factor level...hmmm did she say current?  Yes she did...because next we talked about his levels when he was born & when he was one & when he was 3.  We talked about our past & all the bleeds we had been through...none as major as the one in 2009 that landed him in the hospital for 2 days & 40cc's of blood in his head.  She was honest when she said that she would never say this child didn't have hemophilia.  We had blood work & bleed events to prove it.  Nothing in 4 years indicated that Kolby was misdiagnosed.  But at the same time nothing currently indicated that Kolby still had hemophilia.  She said she would not make excuses, she would not take away what we had been through, she would not give us reasons that didn't seem logical.  She said she didn't know, but sometimes medicine doesn't have the answers and you have to look somewhere else.  She said you just have to be happy with the end results.  I told her I knew what had happened with Kolby & I didn't really care what others thought.  I just cared that he was healed & that he could now live his life as a normal kid.  It was a miracle, we all agreed on that.  So while I haven't really talked about it in the past year, I now feel confident enough to talk about our story.  Often I hear people say God doesn't do miracles anymore, but I know miracles still happen.  They may be small or they may be huge.  It may be making sure you caught a red light so that your family was the car that got hit by the semi or it may be healing a little boy so that he can live a normal life.  We just have to stop & give God the credit for what he has done.  I wasn't sure a year ago that Kolby had been healed...I yelled at my mom when she said that.  My friend mentioned it was a miracle & I told her to stop.  I said it was a medical error that had caused the problem and now we had to figure out what was wrong with him & causing all his bleeds.  I was skeptical & very reserved.  I didn't want to tell anyone or say anything.  I should have been praising God from the rooftops.  I should have been telling everyone I had contact with that God does in fact answer prayers.  I guess when I didn't acknowledge him like I should have he nudged me a little more and gave me a year with no issues and no problems.  He gave me a year where I could not deny what had happened.  He gave me a year to ready my heart so that I could spread his good word.  He gave me a year and now I am ready...miracles do happen.  They happened to us, it happened to Kolby.  I saw a little boy go from bleeding way to easy to being fine.  My little boy was healed by the hand of God.  You may think I am crazy...but trust me my friend, even his dr has said there's not another explanation.  Why should I look for one?